Posts tagged: cystinosis
WINTER SPORTS – Die-hard soloists and teams on skis and snowboards will be riding the lifts through the night on March 21-22 for the annual 24 Hours of Schweitzer.
The all-day, all-night fundraiser benefits cystinosis research.
WINTER SPORTS — The 5th Annual 24 Hours of Schweitzer is less then two weeks away! Is your team of skiers or snowboarders signed up?
This first-class event set for March 22-23 raises money to find a cure for a rare disease by inviting teams or individuals to get pledges and run the slopes of Schweitzer, accumating as much vertical as possible in 24 hours.
Also known as “24 Hours for Hank” — honoring Hank Sturgis of Sandpoint, a 6 year old who has been diagnosed with cystinosis — the event seeks participants to rack up the vertical for bragging rights and a good cause.
To date the foundation has raised more than $500,000 for the Cystinosis Research Foundation.
The Awards Dinner and Auction on Saturday night at Schweitzer Mountain Resort has 100 live and silent auction items and 25 raffle items to raise additional money from skiers and non-skiers alike.
SKIING — Nearly 130 skiers and snowboarders ages 5-74 spearheaded the effort to raise a record $150,000 in the 4th annual “24 Hours of Schweitzer” last weekend.
While an ill-timed storm and gusty winds pounded the resort and forced closure of part of the mountain during the event, the participants compiled a staggering 7.06 million vertical feet of downhilling to bring in money from pledges.
All the money and effort is devoted to boosting cystinosis research. The effort is inspired by the Sandpoint-based family and friends of Hank Sturgis. See details here.
24 Hours champion and record holder Matt Gillis wore a Superman outfit as he successfully defended his title, completing 143 runs in the 24 hours, just barely beating Eric Jensen of Sandpoint — by 15 seconds!
But it will be tough to thoroughly dethrone Gillis, a master skier and aerial performer, who individually raised a whopping record $33,000.
Read on for details about the event and the other amazing players.
SKIING — Downhill skiing marathoners are conditioning their legs or gathering teams for the fourth annual “24 Hours of Schweitzer” March 30-31 at Schweitzer Mountain Resort — a fundraiser for a good cause.
Also known as “24 Hours for Hank,” the event seeks participants to rack up the vertical for bragging rights and cystinosis research.
24 Hours of Schweitzer is a team relay beginning at 8:30 a.m. March 30, running continuously through 8:30 a.m. on March 31.
Participants will ski as many runs as possible in 24 hours for prizes, bragging rights — an a cure for cystinosis, a rare and fatal disease that affects only 500 people nationwide. This all-day and -night fundraiser honors Hank Sturgis of Sandpoint, a 5 year old who has been diagnosed with cystinosis.
Skiers, telemarkers and snowboarders of all ages and abilities are welcome to participate as solo racers or as teams of three or four. Following the event is an awards party and auction that is open to the public.
Read on for details.
SKIING — The third annual “24 Hours of Schweitzer” has begun at Schweitzer Mountain Resort to challenge skiers and raise money for a good cause.
The event has been moved further into spring for more daylight hours to rack up the vertical for bragging rights and cystinosis research.
The event will wrap up tomorrow for the weary skiers as well as for other supporters with a banquet and auction.
Read on for details.